There are two great pieces of news to share. First, thanks to the kindness of two of my former students and the congregation of their church, my place now has ample insulation to get me through the winter. Second, I have adequate heat in the form of a wood stove. There aren’t enough words to express my gratitude for those who helped me get both installed, either. As I type these words, a nice fire roars away in the stove, and the insulation keeps the heat in here with me. It’s a nice feeling compared to the alternative, which I had gotten to know all too well.
Physically, my days range from kind of bad to really bad. One day, the spasms will be constant and unrelenting; the next, the burning in my shoulders will have me nearly in tears (once upon a time, I thought I was kind of tough). Some days I walk okay, but others, I can barely lift my feet. The fatigue continues to worsen, too. Any amount of exertion leaves me absolutely exhausted, and I can’t explain just how much that frustrates me. There are so many things to do, and I can’t do any of them.
I know I’ve expressed that I don’t have a confirmed diagnosis, but the neurologist and I are both fairly certain it’s MS. The symptoms all fit, and it makes sense with the predisposition to autoimmune issues from the Celiac (not sure if “from” is the right preposition there, so scientist friends please don’t bombard me about it). I haven’t mentioned MS on here before, I don’t think, because of the lack of a confirmed diagnosis, but that is the most likely culprit. The good news is it is manageable if I can get health coverage.
Speaking of which, my medical review for social security is next month. With any luck, I can get approved and get some kind of treatment and hopefully be able to get back to work. Mentally, some of the concentration and memory issues seemed to have eased off, so if I could get the physical issues under control, I could at the very least hopefully get back to writing regularly. More than anything else, I want to get better and get back to doing the things I love, the most important of which is being an active father for my sons.
I’m grateful for everyone who has contributed to the fundraising campaign. That money got me through September, October, and November, and without you, I really don’t know what kind of shape I’d be in right now. Hopefully, the medical review will prove beneficial, and I can get income from disability until I can get well enough to fend for myself. Until then, my situation remains pretty desperate. I still hate begging for handouts, and it eats away at me to have to ask, but if you could please share the link around and help me get through the next couple of months, I would greatly appreciate it. Once I’m well and back on my feet, I vow to pay it forward to others in need.
One thought on “Mid-November Update”
Asking for help from friends is not begging, brother. It is the same as falling back on family in a time of need. I will share on my wall and see what we can do….
I hope that things improve soon and as much as possible.
Take care of yourself,