Tag Archives: neurological issues

Yet Another Venting

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I don’t want this post to come across as self-pity because I don’t mean it as such. I’m simply trying to sort through my circumstances and make a little sense out of my life as it currently stands. Right now, the only word that comes to mind is disenfranchised. I feel completely and utterly powerless to impact my own future. With this illness, I can’t fend for myself, and our disability system is a travesty. Civilized societies wouldn’t treat sick pets as poorly as we treat our disabled. Our elected officials are worthless except for photo ops, sound bytes, and empty promises they have no intention of ever fulfilling, and the entire system seems rigged against people like me.

I’m sick of conservatives and their hypocritical phrases like class warfare and entitlements. I’m sick of their willful ignorance of science and reason, their disdain for intellectual progress, and their active defense of overt racism. Their perverse need to punish underprivileged people is a huge part of why I’ve been left with no healthcare and virtually no income for eight months, a timeframe that could’ve allowed me to already be on the road to full recovery and a return to productivity. Instead, I’ve needlessly suffered through months of spasms, fatigue, pain, and shame.

Not that liberals are any better. I’m just as sick of their perverse need to punish me for being a white, heterosexual male, as if my very existence is to blame for the world’s problems. Because of some imaginary privilege I’ve supposedly enjoyed my entire life, my circumstances aren’t worthy of note. My suffering isn’t as real as some other group’s. That dehumanizing way of thinking is the root of most ill done in society, and I’m sick of being made to feel as if my voice and my life are insignificant.

This shame and embarrassment I feel for what my life has become weighs on me every second of every day. I was a good teacher, but the stress and toll of that career is a big part of why I’m broken down now. My writings currently have 98 five-star reviews on Amazon (out of 166 total reviews), but I can’t sell more because I don’t have the money to advertise enough to reach a wider audience. All of my hard work feels like failure because I’ve been reduced to begging for help from family, friends, and even strangers. I would not wish this situation on my worst enemy, and I’m trying to get through it with a shred of sanity and dignity left, but every single day, my hope for tomorrow dims a little more.

I’m tired of feeling disenfranchised, of feeling worthless, of feeling insignificant. A person’s life shouldn’t be reduced to this sorry state. The part of me that put myself through school and juggled two and three jobs over the years wants to fight my way out of this predicament, but my body simply won’t allow it. And I’m not even going to get into how badly I miss my sons and how badly my pride as a father has been damaged by my inability to be active in their lives. That part is simply too painful to discuss. For now, all I can do is try to hang on for another day, but the view from down here is mighty bleak.

Disability Appeal Update

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Here’s an update on my situation. The last few weeks of winter have been fairly difficult. The severe cold temps have made my symptoms flare up just as bad as before, so all of my gains from the paleo program have been wiped out. I’m not giving up on the dietary changes, and I’m hoping warmer weather will bring about some improvements to my health.

My appeal for disability has been filed, and my information has all been sent to the attorney’s office, so hopefully there will be some movement on that front soon. On a related note, anyone who has known me since before all of this started, if you would be willing to write a letter on my behalf describing the diminished capacity you have witnessed, please contact me. I need all of the evidence I can get.

In case you missed it, I have a new release that came out Saturday. The Unquenchable Fire is a novella for the Outlaws of Fiction and the first release of the Sam Skeen saga.

I still need to raise more funds to get through the next couple of months. The brutal cold made me turn on the electric heaters along with the wood stove, so my upcoming electric bill is going to be pretty steep. If you can please help out by donating or sharing the link around, I would be most grateful.

Once again, thank you to everyone for the love and support you have shown. It’s truly kept me from sinking into utter despair, but as long as you all believe in me, I will continue to fight and scrap to regain my health.

Just for fun, here’s a pic from a photo shoot we did before the symptoms got the better of me:

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Another Venting

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I have tried to convey my gratitude for everyone who has helped me through this extremely difficult period. Without everyone’s help, whether it was donating to the GoFundMe campaign or just checking on me occasionally, I don’t know where I would be right now. It’s humbling and inspiring to know just how many real friends I have. While I’m not even close to 100%, more like a little above 50%, I do feel like I’m getting better. In just two weeks, my body feels much different than it did before, and while the neurological symptoms haven’t completely eased off, I am moving better and have more energy than I’ve had in a long time. It’s good to feel an upswing to my health.

But here’s where I need to vent because I’ve held this in for too long.

To all of my so-called friends who never once bothered to check on me, please do not bother now that I feel a little better. To the people who couldn’t see fit to make any effort to help me in my greatest time of need, please do not act surprised when I am no longer a part of your life. To those who used the opportunity to kick me once again while I was down, you had best brace for the sting. To the people who wrote me off as a lost cause, surprise emmeffers. There’s still plenty of fight in these old bones. To those who made insincere gestures or empty promises, you had best believe I will remember that you don’t really have my back. I will remember my real friends. I will remember those who cared about me at my weakest and most vulnerable. Those of you who didn’t will not share in my future triumphs, of that you can be certain.

I’m not back yet, not fully. My coordination is still off, my legs still bother me to no end, and the spasms still hit me off and on. But I am on my way back. This little illness is not enough to break me. I’m D.A. Adams, and I’ve just begun to kick ass.