Tag Archives: creativity

Here’s Some New Year-New You Stuff, Kind Of, Not Really

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This neurological disorder has really done a number on me. Over the last year or so, my fine motor skills and spatial coordination have eroded rapidly; I’ve experienced regular muscle spasms accompanied by a painful electric jolt; I’ve fallen at least four times, which is quite terrifying when it happens in the middle of the night all alone; phantom bugs have crawled up my arms and legs; my memory, concentration, and cognitive abilities have been foggy; my left arm has become almost completely numb; and I’ve had to reassess my threshold for pain. There have been moments when I believed myself a goner, if not fully at least functionally, and by far, the hardest part of all of it has been the diminished capacity to write. Even a short blog post like this one takes hours to compose because of all the breaks I have to take and the pitiful state of my typing. In short, the last 15-16 months have presented some interesting challenges.

But now, hopefully, the tide is about to turn.

The other day, an acquaintance directed me to research that sheds a little light on what could potentially be the cause of my illness. If you don’t have time to read that article, in a nutshell, excessive sodium intake, primarily from processed foods, can cause the body’s Th 17 cells, which are part of the immune system, to become overly aggressive and attack normal body tissues. While not definitive, the research lends itself to the idea that excessive sodium consumption can trigger an autoimmune disease like MS. I must admit to being guilty of relying too much on processed foods in my diet over the years, and when I really got to looking into it, I realized that my sodium intake has been much higher than I had thought. I never add salt to anything and barely cook with it, so I figured I was okay. However, once I looked closely, I had to admit to myself that I’ve consumed way beyond the recommended amount.

That same acquaintance also pointed me towards how a paleo diet has shown positive results at not just halting but reversing MS symptoms. He himself has seen a dramatic recovery in the 3-4 months he’s been following paleo. While the effects of the diet could just be related to the reduction of sodium, there seems to be more to it than that. I’ve already been gluten free for three years, and when I first cut it out, my symptoms all but disappeared, leading me to believe I had found the culprit. However, now that my symptoms have returned, it stands to reason that if gluten can be responsible for neurological degeneration, other foods could be as well.

Therefore, I have decided to make every effort to follow the paleo diet guidelines and remove restricted items from my intake. I plan to chronicle my results here to have a record of my experiences and responses to the change in nutrition. Hopefully, I will see the same improvements to my health that others have shown. Regardless, it feels nice to have a ray of hope after so many months of decline. If I can at least get back to the point of being able to write regularly and work outdoors even just a little, I will be content with the results. So here goes nothing as I start my journey to recovery.

The Conversations We Need to Have

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Open and honest discussions of racism and prejudice matter. The cold, harsh reality in America today is that racism is alive and well. My Facebook newsfeed over the last few months has proven that fact to me and opened my eyes. Not so long ago, when America elected its first African-American president, I believed that our culture had made tremendous progress in overcoming racial discrimination, and in some ways we have. In 2008, I believed racism had been pushed to the fringes, populated only by lunatics and the truly backwards. However, ever since the protests and rioting over Michael Brown’s murder made national news, my eyes have been open to the fact that many, many people still harbor horrific racist views about minorities.

I have long believed that race is merely a mirage. I believed this long before DNA proved it right, and my reasoning was based on observation and experience. I’ve had the good fortune to have lived a rather diverse life among a myriad of people, and what I have learned from my interactions with people of numerous nationalities and religious backgrounds and cultural identities is that people are people no matter where you go. Some would offer you their last bowl of soup if you needed it; others wouldn’t share if their pantry was overflowing and you were dying of starvation before their very eyes; and still others would steal a life-saving meal right out of your hands. And like most everything, there are countless shades in between. The simple reality is you cannot tell who truly falls into which category until you witness their behavior in your moments of weakness.

In college, I discovered the writings of Frederick Douglass and Booker T. Washington and immediately felt a kinship for these former slaves, not because of racial identity but because of the obstacles of poverty that they had overcome. As I studied their works, I began to see that race and bigotry are social constructs used to divide us so that we the populace never learn to cooperate as a unit. Skin color is such an easy divider, and it becomes so easy to say I knew “those people” would behave that way, no matter that you can easily find examples of other skin tones doing the exact same things and no matter what the examples might be. When people, human beings, get upset over circumstances out of their control, a certain element take it upon themselves to destroy other people’s property, usually stuff that belongs to some innocent bystander. Whenever social order breaks down, there will always be an element, irrespective of skin tone, who capitalize on the opportunity to steal material objects. That’s human nature, regardless of “race.”

I always knew that I wanted to write works that would attempt to break down racist thinking, and though I thought progress had been made, I also believed that there was still work to be done to rectify the centuries of slavery and now century and a half of social and economic discrimination. I also knew that as a white man from the hills of East Tennessee, I would have an uphill battle to write about race relations in America. To counter this stereotype (and yes, I live under the yolk of an oppressive stereotype about hillbillies, and no, I’m not making an attempt to draw a comparative analysis of being more or less oppressed than anyone else because that’s counter-productive), I chose to use Fantasy Action-Adventure as my medium for discussing race and discrimination.

The main character in my series is bi-racial and struggles to find his identity between two disparate cultures. Each race carries misconceptions and prejudices about the others, and from those mistaken ideas much of the tension grows. However, through the course of the series, the central characters learn to see each other as individuals, not as part of a “them,” and through this process they learn to work together to defeat their common enemies, those who seek to oppress. I’ve not discussed this facet of the series very often because I had always hoped my audience would find it for themselves. However, as we encounter this new era of racial tension, it is more imperative than ever that we as a society discuss these issues and listen to each other.

So now, I’m going to be something of a capitalist and ask you to buy the first book in my series and share it with the young adults in your life (Because it is fantasy and there is some bloodshed, I do not recommend the series to anyone under ten years old). I’m making this appeal for two reasons. First, we need to have these open and honest discussions about the racial problems that still exist in this country, and I’m a firm believer that fiction can be an excellent bridge to discuss difficult topics. My second reason is that I need to sell more books to be able to afford treatment for this neurological condition that is crippling my body. So if you would like a good work of fiction that examines the racial divide we are facing today and would like to help out a person in need, you can do both by checking out The Brotherhood of Dwarves. As always, thank you for your support.

http://www.amazon.com/dp/B0076OCAKG

Mid-November Update

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There are two great pieces of news to share. First, thanks to the kindness of two of my former students and the congregation of their church, my place now has ample insulation to get me through the winter. Second, I have adequate heat in the form of a wood stove. There aren’t enough words to express my gratitude for those who helped me get both installed, either. As I type these words, a nice fire roars away in the stove, and the insulation keeps the heat in here with me. It’s a nice feeling compared to the alternative, which I had gotten to know all too well.

Physically, my days range from kind of bad to really bad. One day, the spasms will be constant and unrelenting; the next, the burning in my shoulders will have me nearly in tears (once upon a time, I thought I was kind of tough). Some days I walk okay, but others, I can barely lift my feet. The fatigue continues to worsen, too. Any amount of exertion leaves me absolutely exhausted, and I can’t explain just how much that frustrates me. There are so many things to do, and I can’t do any of them.

I know I’ve expressed that I don’t have a confirmed diagnosis, but the neurologist and I are both fairly certain it’s MS. The symptoms all fit, and it makes sense with the predisposition to autoimmune issues from the Celiac (not sure if “from” is the right preposition there, so scientist friends please don’t bombard me about it). I haven’t mentioned MS on here before, I don’t think, because of the lack of a confirmed diagnosis, but that is the most likely culprit. The good news is it is manageable if I can get health coverage.

Speaking of which, my medical review for social security is next month. With any luck, I can get approved and get some kind of treatment and hopefully be able to get back to work. Mentally, some of the concentration and memory issues seemed to have eased off, so if I could get the physical issues under control, I could at the very least hopefully get back to writing regularly. More than anything else, I want to get better and get back to doing the things I love, the most important of which is being an active father for my sons.

I’m grateful for everyone who has contributed to the fundraising campaign. That money got me through September, October, and November, and without you, I really don’t know what kind of shape I’d be in right now. Hopefully, the medical review will prove beneficial, and I can get income from disability until I can get well enough to fend for myself. Until then, my situation remains pretty desperate. I still hate begging for handouts, and it eats away at me to have to ask, but if you could please share the link around and help me get through the next couple of months, I would greatly appreciate it. Once I’m well and back on my feet, I vow to pay it forward to others in need.

http://www.gofundme.com/brotherhood