Tag Archives: book

Mid-November Update

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There are two great pieces of news to share. First, thanks to the kindness of two of my former students and the congregation of their church, my place now has ample insulation to get me through the winter. Second, I have adequate heat in the form of a wood stove. There aren’t enough words to express my gratitude for those who helped me get both installed, either. As I type these words, a nice fire roars away in the stove, and the insulation keeps the heat in here with me. It’s a nice feeling compared to the alternative, which I had gotten to know all too well.

Physically, my days range from kind of bad to really bad. One day, the spasms will be constant and unrelenting; the next, the burning in my shoulders will have me nearly in tears (once upon a time, I thought I was kind of tough). Some days I walk okay, but others, I can barely lift my feet. The fatigue continues to worsen, too. Any amount of exertion leaves me absolutely exhausted, and I can’t explain just how much that frustrates me. There are so many things to do, and I can’t do any of them.

I know I’ve expressed that I don’t have a confirmed diagnosis, but the neurologist and I are both fairly certain it’s MS. The symptoms all fit, and it makes sense with the predisposition to autoimmune issues from the Celiac (not sure if “from” is the right preposition there, so scientist friends please don’t bombard me about it). I haven’t mentioned MS on here before, I don’t think, because of the lack of a confirmed diagnosis, but that is the most likely culprit. The good news is it is manageable if I can get health coverage.

Speaking of which, my medical review for social security is next month. With any luck, I can get approved and get some kind of treatment and hopefully be able to get back to work. Mentally, some of the concentration and memory issues seemed to have eased off, so if I could get the physical issues under control, I could at the very least hopefully get back to writing regularly. More than anything else, I want to get better and get back to doing the things I love, the most important of which is being an active father for my sons.

I’m grateful for everyone who has contributed to the fundraising campaign. That money got me through September, October, and November, and without you, I really don’t know what kind of shape I’d be in right now. Hopefully, the medical review will prove beneficial, and I can get income from disability until I can get well enough to fend for myself. Until then, my situation remains pretty desperate. I still hate begging for handouts, and it eats away at me to have to ask, but if you could please share the link around and help me get through the next couple of months, I would greatly appreciate it. Once I’m well and back on my feet, I vow to pay it forward to others in need.

http://www.gofundme.com/brotherhood

A Much Needed Rant

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For the last three plus years, I’ve lived every waking second in some degree of pain. Up until June of this year, I endured this pain and soldiered on because I held out some hope that maybe one day things would get better. Now, the pain gets so bad that sometimes I wonder if I can take it for much longer. Most nights, I awake from a dead sleep calling out in pain. My left hand is nearly useless from trembling, numbness, and constant twitching. I can barely walk because I literally cannot tell how high my feet are off the ground and because the muscle spasms make my legs hurt so badly that the very act of walking is painful. Now, any amount of physical exertion exhausts me within minutes.

I feel used up and discarded, and for the first time in my life, I regret moving back to East Tennessee to teach. This state does not value education or educators. It does not value literacy. I regret allowing some misguided ideology that I needed to come back here and teach because if not me then who would do it. I was a fool for not moving to New York or LA and writing for TV or the movies. I should have been selfish and gotten as far away from this backwards, pill-popping, illiterate state as I could. For the first time in my life, I’m truly ashamed to be from Tennessee. I’m ashamed of this place and the ignorance and corruption which govern it.

I’m angry and bitter, and I feel completely and utterly hopeless.

Talking Smack

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I made this vow over the weekend, and it should come as no surprise to anyone who really knows me: Regardless of my diagnosis on Wednesday, I will fight this neurological disease with everything in me. It has no idea the mistake it made coming at me, son. And once I’m back to feeling like myself, I’m hitting the world like an emeffing tornado. Stand back and watch because the show will be entertaining!